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So I Say

Another headache
The third today
We all have them
So they say

I’m getting dizzy
My vision blurred
You're getting older
Don’t be absurd

I’m staying home
Too tired to go
Go see your doctor
She should know

Too many symptoms
You must be stressed
Take medication
And get some rest

I cannot think well
Can’t find the words
My memory slipping
My speech gets slurred

We’ll get a scan
Since you insist
If we find nothing
Please don’t persist

Don’t make me laugh
Don’t make me cry
It hurts to strain
I don’t know why

Your scan is fine
By report today
Incidental Chiari
So they say

Incidental
What do you mean
By a doctor
I have not seen

It is anxiety
That makes you so
The world is stressful
I think you know

I pulled away
Gave up, or such
Until the pressure
Became too much

I waded through
The Internet
Fearful of losing
What I had left

It took some time
To come to know
My brain is hanging
Down too low

With every beat
The fluid flows
Deep in the brain
To the opening below

The rush of fluid
Seeking release
Finds cerebellum
Which makes it cease

The pressure spikes
My head explodes
It makes such sense
Now that I know

Working together
We’ll find a way
To make it better
So I say

John Oró, MD

Support Services for Patients with Chiari

The support you receive from your family, your friends and other sources is an important component of your treatment plan and recovery. Support services for patients with Chiari I Malformation, syringomyelia and tethered cord syndrome are growing. As more resources become available we will update this information.

Online Support

Many of these organizations offer information about support groups, message boards, chat rooms, patient stories and much more.

Local Support

Denver, Colorado Chapter of The Chiari & Syringomyelia Foundation, Inc.

Related Book

In February 2008, Dr. John Oró and Diane Mueller, ND, NP published The Chiari Book: A Guide for Patients, Families, and Health Care Providers to help increase awareness of the Chiari I Malformation and syringomyelia, and offer hope to those who are affected.

The Chiari Book is based on the experience gained in evaluating more than 1,200 patients for the Chiari I malformation and syringomyelia. Illustrated with drawings and photographs, the book is meant to be easy to read and understand.

Purchase The Chiari Book: A Guide for Patients, Families, and Health Care Providers for $15.